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(Journal article / Tidsskriftartikkel / PublishedVersion; Peer reviewed, 2021)
Background
Discrete Choice Experiment (DCE) is a well-established technique to elicit individual preferences, but it has rarely been used to elicit governance preferences for health data sharing.
Objectives
The aim ...
(Journal article / Tidsskriftartikkel / PublishedVersion; Peer reviewed, 2021)
Background: Digital technological development in the last 20 years has led to significant growth in digital collection, use, and sharing of health data. To maintain public trust in the digital society and to enable acceptable ...
(Journal article / Tidsskriftartikkel / AcceptedVersion; Peer reviewed, 2021)
Background
The governance structures associated with health data are evolving in response to advances in digital technologies that enable new ways of capturing, using, and sharing different types of data. Increasingly, ...