Browsing Institutt for helse og samfunn by Author "Nicol, Dianne"

Now showing items 1-2 of 2

  • Consent insufficient for data release 
    Nicol, Dianne; Eckstein, Lisa; Bentzen, Heidi Beate; Borry, Pascal; Burgess, Mike; Burke, Wylie; Chalmers, Don; Cho, Mildred; Dove, Edward S.; Fullerton, Stephanie; Ida, Ryuichi; Kato, Kazuto; Kaye, Jane; Koenig, Barbara; Manson, Spero; McGrail, Kimberlyn; Meslin, Eric M.; O'Doherty, Kieran; Prainsack, Barbara; Shabani, Mahsa; Tabor, Holly; Thorogood, Adrian; de Vries, Jantina (Journal article / Tidsskriftartikkel / AcceptedVersion; Peer reviewed, 2019)
  • Toward better governance of human genomic data 
    O'Doherty, Kieran C.; Shabani, Mahsa; Dove, Edward S.; Bentzen, Heidi Beate; Borry, Pascal; Burgess, Michael M.; Chalmers, Don; de Vries, Jantina; Eckstein, Lisa; Fullerton, Stephanie; Juengst, Eric; Kato, Kazuto; Kaye, Jane; Knoppers, Bartha Maria; Koenig, Barbara; Manson, Spero; McGrail, Kimberlyn; McGuire, Amy L.; Meslin, Eric M.; Nicol, Dianne; Prainsack, Barbara; Terry, Sharon F.; Thorogood, Adrian; Burke, Wylie (Journal article / Tidsskriftartikkel / AcceptedVersion; Peer reviewed, 2021)
    Here, we argue that, in line with the dramatic increase in the collection, storage and curation of human genomic data for biomedical research, genomic data repositories and consortia have adopted governance frameworks to ...