Now showing items 1-2 of 2
(Book / Bok / PublishedVersion; Peer reviewed, 2017)
The book aims to be a resource for those interested in planning and implementing large-scale information infrastructures for novel electronic services in health care. The focus of this book is on the pivotal role of the ...
A Lens for Evaluating Genetic Information Governance Models: Balancing Equity, Efficiency and Sustainability
(Journal article / Tidsskriftartikkel / PublishedVersion; Peer reviewed, 2017)
This paper draws from the literature on collective action and the governance of the commons to address the governance of genetic data on variants of specific genes. Specifically, the data arrangements under study relate ...